This book is a true story of a little boy's life through 6 years of sickness, diagnosis of a primary immunodeficiency, called X-Linked Agammaglobulinemia, and his journey to begin treatments. The book also tells what his life has been like in the 4 years since diagnosis along with information about red flags for primary immunodeficiency in people of all ages. This book was written to help others who are either health compromised or just received a similar diagnosis of a primary immunodeficiency. There is a disclaimer to parents in the front of the book- the book contains real life situations communicated in a child like cartoon graphic way with health issues suck as skin infections, needles and getting their blood drawn that could be sensitive to some readers. Parents should use their discretion as to if this book should be read by their child. It is important to create books of this manner for the population of children who do not have a lifestyle of this type so they can understand they are not alone and to give them tools that help them understand and cope with their new normal.
Author: Kyliegh Kite |
Publisher: Kyliegh Kite Art |
Publication Date: July 03, 2021 |
Number of Pages: 53 pages |
Language: English |
Binding: Paperback |
ISBN-10: 0578947072 |
ISBN-13: 9780578947075 |